So, I've suspected for a while that Matilda has an upper lip tie. I dismissed the idea that she did, because she was checked by a Midwife in the hospital when we were having latching issues on the second night. But then, I was looking closely at an inforgraphic of what it looks like when babies were latched correctly. Matilda's bottom lip looked perfect, her top lip looked like an accordion. And she always has a sucking callous.
Still, I thought, no, she was checked. Or surely, the two lactation consultants we saw would have picked it up. That's what these people are supposed to do. But, me being me, I researched further.
All her symptoms can be caused by ties. I looked at pictures, comparing them to Tilly. Yep, that certainly looks like a tie. Shit. Think back to the hospital...the midwife (the only midwife I had a problem with during our whole stay) checked her. But, it was in the dark, with a torch, in the middle of the night. Did she check her lip? Or just her tongue? I can't remember. It was our second night, Tilly had only really just started to want to feed. She said there was no tie, so I believed it, why wouldn't I? (I don't blame these people. I've discovered that hardly anyone is trained to pick up ties, or if they are, they are not treated as seriously as they actually are, as in, if the baby is latching, feeding and gaining weight then there is no problem. Which actually isn't true. All ties are serious. All ties need to be released.)
We had lots of latching issues. I was in pain. I would cry out and feed her with tears rolling down my cheeks. We saw a lactation consultant at the hospital. She watched Tilly feed and deduced that I wasn't lining her up to my nipple properly. We practiced. It got better. The pain went away. Tilly started gaining weight (she lost a lot. Well over 10%) When we went back for our follow up they were happy. And that was that.
I knew deep down that something wasn't right. Mothers intuition if you will. I knew she wouldn't just scream for no reason. I knew that she could probably go longer than an hour without feeding. That she shouldn't get so tired when feeding. That, she was above average at birth, but only tracking very average for weight gain now. It all pointed to ties. Then, I voiced my concerns. I don't think anyone really believed that it could be true. But, I had to get her checked. I made an appointment with a dentist who specializes in ties. If nothing comes of it, then great, I was wrong, and she is fine. Phew. But I knew that it wasn't fine.
Just as I suspected. An upper lip tie. A quite severe one. And with lip ties almost always come tongue ties. Tilly has a posterior tongue tie. This means that she can poke her tongue out, but she can't move it effectively, so she actually isn't sucking as effectively as she could. This is why she needs to feed so often, and because of the lip tie, she isn't getting a proper seal, and it taking in lots of air, hence all her wind issues.
Cue the Mum guilt. All her suffering could have been avoided if it had been picked up earlier. I dismissed it, she was checked, they didn't find a tie, she doesn't have a tie.
We got home on Thursday after her appointment, and I put her to sleep and I cried. I cried with guilt and I cried with relief. Hopefully when they are release in 3 weeks she won't be so uncomfortable. We don't have an easy time ahead. There is a lot of body work involved to make sure they don't grow back, also, once they're released lots of muscles that have been compensating will relax. She will effectively need to relearn how to feed. This could mean more pain for me, and frustration for her. But, ultimately, she will be so much better off.
I think people were shocked that I was actually right. That maybe they thought I was just overreacting, but I didn't let that stop me. I followed my instincts. Don't ever dismiss your gut feeling. Your gut is like a second brain, if you feel something in you gut (and you aren't hungry, lol) it's probably wise to follow it.
So now, I'm anxiously awaiting the day of her release. I'm shitting myself, because I'll have to hear her scream. But, it will be over swiftly, and she will be all the better for it, but if I could bare that pain for her, I would do it in a heartbeat. My love for her is fierce.
And on that note, I can see her stirring on the monitor. Her little arms reaching out to find me, and I'm not there. I will go and lie next to her, and she will tuck into me, feeling safe and secure and loved.